Different doctors FTW
My pain diagnostic specialist is elegantly opinionated. Fortunately, he acts out the distinction between being opinionated and being rude about it. We talked over a… Read More »Different doctors FTW
perspective
Isy’s guidelines for taking care of relationships when it’s imp-possible to have them
Relationships can be so fraught! Add to that a disease nobody understands without years of serious effort; unbelievable pain; weird deficits (sound volume? Vibration? Time… Read More »Isy’s guidelines for taking care of relationships when it’s imp-possible to have them
Cleaning up the question of antibacterial soap
This is from one of my Isypedia-type replies to someone with a dreadful case of clostridium difficile (commonly known as c.diff) who had been told to… Read More »Cleaning up the question of antibacterial soap
Talking about CRPS with boundaries, perspective, and joy
I’m going through one of those periods where I’m just tired of my body hurting. This is one of those offhand remarks that makes fellow… Read More »Talking about CRPS with boundaries, perspective, and joy
Doctor appointment optimization
Here’s my Doctor Appointment Optimization strategy. This is especially important for new diagnoses, new doctors, and any significant change or comcern you have. – Between… Read More »Doctor appointment optimization
What does it take to seize a difficult life in both hands?
This disease, like time and life, dips and dances but tends to go in one direction. As long as it doesn’t outrun my ability to… Read More »What does it take to seize a difficult life in both hands?
Fixing the brakes
Interesting week here. A dear friend is embroiled in one of those ghastly legal tangles where the vultures are rigged to win. I’m the key… Read More »Fixing the brakes
Make room for joy, especially when it isn’t easy
I’m an old ER nurse so please, trust me when I say that nobody gets a guarantee with this life. Nobody really knows what’s next,… Read More »Make room for joy, especially when it isn’t easy
Losing Our Angels to Suicide
A friend I’ll call A died of suicide last night. It’s easy to say of people that they are rare and radiant souls once they’re… Read More »Losing Our Angels to Suicide
Handling anxiety and its obnoxious little friends
In CRPS and dysautonomia, several parts of the brain get under- or over-enthusiastic (or both, unpredictably.) It’s easy to oversimplify, but even more confusing; each… Read More »Handling anxiety and its obnoxious little friends