All. That. Love.
Straight into Coping Mode. From letter to my doctor Dear Dr. S, Big stress here: my partner and caretaker went off the rails and has… Read More »All. That. Love.
perspective
Bearing witness — what it is, what it isn’t
I’m a history nerd. I love the stuff. This is the anniversary of the sinking of the Titanic. I had the dizzying experience of being… Read More »Bearing witness — what it is, what it isn’t
When I lose everything but me
This is one of several blog posts I drafted late last year and got distracted from. This isn’t the duckiest or most amusing one to… Read More »When I lose everything but me
CRPS terminology, under the nervous grin
After talking with patients, doctors, and loved ones — and, as a trained observer, carefully noticing the changes in posture, expression, and tone as I’ve… Read More »CRPS terminology, under the nervous grin
Related: health care coverage, economic policy, and racism
The same thinking that underlies racism, sexism, and classism underlies the thinking that says, “Hey, let’s get rid of health care coverage for those who… Read More »Related: health care coverage, economic policy, and racism
Remapping and the primitive brain; toolkit bonuses at end
Remapping and the primitive brain are key concepts that come up often for people with chronic pain — though we don’t always know it. These underlie some treatment… Read More »Remapping and the primitive brain; toolkit bonuses at end
Freaky Fibro and the elegance of precision
As the title hints, it’s been another fascinating visit with my pain diagnostician. His current working diagnosis is fibromyalgia, which he characterizes as being capable… Read More »Freaky Fibro and the elegance of precision
Fifty One
Guess what? Everything’s up in the air, except me. But don’t worry, it’ll work out. And that, folks, is how you know I’m back in… Read More »Fifty One
Different doctors FTW
My pain diagnostic specialist is elegantly opinionated. Fortunately, he acts out the distinction between being opinionated and being rude about it. We talked over a… Read More »Different doctors FTW
Isy’s guidelines for taking care of relationships when it’s imp-possible to have them
Relationships can be so fraught! Add to that a disease nobody understands without years of serious effort; unbelievable pain; weird deficits (sound volume? Vibration? Time… Read More »Isy’s guidelines for taking care of relationships when it’s imp-possible to have them