activity

May 2023 on the Back 40

by Isy
May 14, 2023May 14, 2023
activity, adaptation, basics, brain care, care team, CRPS knock-on effects, imp-possible, loved ones, mortality, nutrition, radical presence/radical acceptance, self-care

In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40

More on environmental insults on a hyper-reactive system

by Isy
January 30, 2023January 30, 2023
activity, adaptation, CRPS knock-on effects, imp-possible, moving/traveling, neurogastroenterology, nutrition, radical presence/radical acceptance, self-care, tools and techniques

I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system

Adaptation tools in use

by Isy
May 26, 2022May 26, 2022
1 Comment
activity, adaptation, ANS and fight-or-flight, brain care, Covid-19, CRPS knock-on effects, imp-possible, loved ones, mortality, radical presence/radical acceptance, tools and techniques, what works

As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use

Excercise intolerance, the invisible vampire

by Isy
November 3, 2021November 3, 2021
activity, adaptation, basics, brainiac, imp-possible, PubMed, self-care

I’ve been walking for 2 1/4 miles 6 out of 7 days per week for a few weeks, and it stopped kicking my butt, woohoo!… Read More »Excercise intolerance, the invisible vampire

New set of wheels

by Isy
September 24, 2021
activity, adaptation, basics, marathon, radical presence/radical acceptance, self-care, what works

I walk everywhere I need to go. I finally tried the bus, and honestly, it could have been worse — but the base of my… Read More »New set of wheels

The Place to Be

by Isy
September 4, 2021September 4, 2021
2 Comments
activity, ANS and fight-or-flight, imp-possible, nature, perspective, poetry, radical presence/radical acceptance, what works

On a rock in a river Clean quiet murbles and shushes everything Not Me drawn gently off So easy. Skeeters drift on, slackjawed with… Read More »The Place to Be

Active presence

by Isy
October 1, 2020October 1, 2020
activity, basics, CRPS knock-on effects, imp-possible, mortality, nutrition, perspective, radical presence/radical acceptance, what works

I love the term “radical presence” because it feels radical to jump the barrier of overwhelming emotion to land face-to-face with the moment and be… Read More »Active presence

Next step, stop!

by Isy
February 2, 2020
activity, adaptation, brain care, imp-possible, neurotransmitters, radical presence/radical acceptance, self-care

Update on wifiddling… I got an idiot-proof radiation meter. Wifi is in the microwave band of 2,500 GHz and the additional 5,000 GHz band, which… Read More »Next step, stop!

There’s always an afterwards

by Isy
October 15, 2019October 15, 2019
3 Comments
activity, adaptation, basics, brain care, brain plasticity, critical thinking, CRPS knock-on effects, imp-possible, loved ones, mortality, radical presence/radical acceptance, self-care

This, right after “Keep breathing”, is one of my go-to pieces of mind management. It’s about so much more than consequences. Let’s take an example.… Read More »There’s always an afterwards

Shore Break

by Isy
September 23, 2019September 23, 2019
2 Comments
activity, brain plasticity, CRPS knock-on effects, imp-possible, loved ones, moving/traveling, nature, perspective, self-care, story

There I was, trying to steer the 3-headed rhinoceros that is the de-mold-the-mobile-home project (dubbed “DeStroy DeMold.”) Two of my volunteers had gotten sick with… Read More »Shore Break

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