radical presence/radical acceptance

crab nebula, tuned to look like brain activity

May 2023 on the Back 40

by Isy
May 14, 2023May 14, 2023
activity, adaptation, basics, brain care, care team, CRPS knock-on effects, imp-possible, loved ones, mortality, nutrition, radical presence/radical acceptance, self-care

In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40

The limits of mitigation: dishwashing

by Isy
April 12, 2023April 12, 2023
adaptation, basics, CRPS knock-on effects, documentation, food allergies, loved ones, perspective, radical presence/radical acceptance, what works

This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing

More on environmental insults on a hyper-reactive system

by Isy
January 30, 2023January 30, 2023
activity, adaptation, CRPS knock-on effects, imp-possible, moving/traveling, neurogastroenterology, nutrition, radical presence/radical acceptance, self-care, tools and techniques

I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system

Competing needs vs. Layered needs

by Isy
January 21, 2023January 21, 2023
basics, care team, food allergies, imp-possible, nutrition, radical presence/radical acceptance, self-care, what works

CW: food & size & related topics. Many things are coming together and my soul is taking warmth and strength from the concatenation of care.… Read More »Competing needs vs. Layered needs

Putting words to the problems

by Isy
January 13, 2023January 13, 2023
1 Comment
basics, CRPS knock-on effects, food allergies, imp-possible, money, nutrition, radical presence/radical acceptance, self-care

Thanks to wonderful people, I’m getting help in my home. Holy hosannahs, people, it. Is. Amazing. My part of the bargain is to get the… Read More »Putting words to the problems

Seeing, as in looking at, stars

by Isy
August 1, 2022August 2, 2022
basics, brain care, Covid-19, documentation, imp-possible, loved ones, mortality, nature, perspective, radical presence/radical acceptance, reiki/meditation, self-care

I saw a whole lot of stars last night. Good for the soul, that. I’ve been taking this opportunity to be in the experience of… Read More »Seeing, as in looking at, stars

Update: using adaptation tools

by Isy
May 29, 2022
adaptation, brain care, critical thinking, CRPS knock-on effects, imp-possible, loved ones, perspective, radical presence/radical acceptance, self-care, tools and techniques, what works

Yesterday, it came naturally to be warmly present for V during a big event where I stood in for her, even at a distance of… Read More »Update: using adaptation tools

Adaptation tools in use

by Isy
May 26, 2022May 26, 2022
1 Comment
activity, adaptation, ANS and fight-or-flight, brain care, Covid-19, CRPS knock-on effects, imp-possible, loved ones, mortality, radical presence/radical acceptance, tools and techniques, what works

As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use

First aid kit – homeopathic side

by Isy
October 7, 2021October 7, 2021
basics, brain care, CRPS knock-on effects, meds/drugs, neurotransmitters, nutrition, radical presence/radical acceptance, self-care, supplements, what works

I’d like to eschew certain arguments altogether. This is not about dissing or justifying one approach over others. Every one of us has to figure… Read More »First aid kit – homeopathic side

New set of wheels

by Isy
September 24, 2021
activity, adaptation, basics, marathon, radical presence/radical acceptance, self-care, what works

I walk everywhere I need to go. I finally tried the bus, and honestly, it could have been worse — but the base of my… Read More »New set of wheels

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