My job as a complex chronic patient
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
perspective
Why Pride means life
On my 21st birthday, I went out with a bunch of women friends, including 2 couples. All of us health-care workers. Drunk jerk got thrown… Read More »Why Pride means life
The limits of mitigation: dishwashing
This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing
Seeing, as in looking at, stars
I saw a whole lot of stars last night. Good for the soul, that. I’ve been taking this opportunity to be in the experience of… Read More »Seeing, as in looking at, stars
Update: using adaptation tools
Yesterday, it came naturally to be warmly present for V during a big event where I stood in for her, even at a distance of… Read More »Update: using adaptation tools
The freedom of masking
Two years ago, if I were walking down a sidewalk next to trucks belching diesel, I had to breathe shallowly and mentally plan on the… Read More »The freedom of masking
Wholeness is order
Many people have figured out before me that approaching life coherently, as a complex creature with inward & outward lives, as physical and energetic beings… Read More »Wholeness is order
The Place to Be
On a rock in a river Clean quiet murbles and shushes everything Not Me drawn gently off So easy. Skeeters drift on, slackjawed with… Read More »The Place to Be
When momentum uses inertia
That last post, about acknowledging the shimmering sense of mortality I’ve lived with for nearly a year? Well, I kept meaning to post an update,… Read More »When momentum uses inertia
Active presence
I love the term “radical presence” because it feels radical to jump the barrier of overwhelming emotion to land face-to-face with the moment and be… Read More »Active presence