CRPS knock-on effects

Pulling the masks off in pieces

by Isy
September 5, 2025September 5, 2025
adaptation, communication tools, CRPS knock-on effects, documentation, imp-possible, perspective, radical presence/radical acceptance, self-care

Having crashed and burned in a (for me) spectacular manner, I’m being (ahem) encouraged by many of my nearest and dearest to stop pretending I’m… Read More »Pulling the masks off in pieces

The Beast

by Isy
August 27, 2025
activity, ANS and fight-or-flight, CRPS knock-on effects, loved ones, perspective, self-care, survival

One of the characteristics of CRPS and some other longstanding brain-driven pain conditions is the occasional personality transplants which, especially combined with memory-holes and perceptual… Read More »The Beast

Care of Spines & CRPS

by Isy
April 2, 2025
activity, basics, brain care, CRPS knock-on effects, injuries & surgeries, radical presence/radical acceptance, self-care, tools and techniques

This is about the messy intersection of CRPS & the mechanical aspects of central nervous system dysfunction, and dealing with those effects. I’m writing through… Read More »Care of Spines & CRPS

With a pet & chronic illness

by Isy
March 5, 2025
CRPS knock-on effects, documentation, food allergies, imp-possible, moving/traveling, perspective, radical presence/radical acceptance, self-care, survival, tips on traveling with pain

This is a long one. Grab something to drink and put your feet up, if you want to… In the wildly unlikely event that, say,… Read More »With a pet & chronic illness

Foggy… and formats

by Isy
February 15, 2025
critical thinking, CRPS knock-on effects, imp-possible, what works

There’s been a lot going on, but I’m not up to discussing it for lots of reasons, but mostly, TBH, because I’m foggy. I’m thinking… Read More »Foggy… and formats

Onward and downward

by Isy
September 5, 2023September 5, 2023
activity, basics, CRPS knock-on effects, imp-possible, perspective, radical presence/radical acceptance, self-care

My poor ol’ body has been carrying an unfair load for a long time. It does its very best, but the dice are loaded and,… Read More »Onward and downward

crab nebula, tuned to look like brain activity

May 2023 on the Back 40

by Isy
May 14, 2023May 14, 2023
activity, adaptation, basics, brain care, care team, CRPS knock-on effects, imp-possible, loved ones, mortality, nutrition, radical presence/radical acceptance, self-care

In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40

The limits of mitigation: dishwashing

by Isy
April 12, 2023April 12, 2023
adaptation, basics, CRPS knock-on effects, documentation, food allergies, loved ones, perspective, radical presence/radical acceptance, what works

This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing

More on environmental insults on a hyper-reactive system

by Isy
January 30, 2023January 30, 2023
activity, adaptation, CRPS knock-on effects, imp-possible, moving/traveling, neurogastroenterology, nutrition, radical presence/radical acceptance, self-care, tools and techniques

I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system

Putting words to the problems

by Isy
January 13, 2023January 13, 2023
1 Comment
basics, CRPS knock-on effects, food allergies, imp-possible, money, nutrition, radical presence/radical acceptance, self-care

Thanks to wonderful people, I’m getting help in my home. Holy hosannahs, people, it. Is. Amazing. My part of the bargain is to get the… Read More »Putting words to the problems