care team

Where to start? Head to toe

by Isy
April 30, 2025
basics, care team, definitions & descriptions, Head, Head to toe

I’m going to give organizing my mental database a try here. The aim is to pick one broad topic each month and cycle through them… Read More »Where to start? Head to toe

It gets weird in here

by Isy
March 14, 2025March 14, 2025
adaptation, brainiac, care team, critical thinking, cultural context, opinion, perspective, radical presence/radical acceptance

I was chatting with a close friend about a week ago. He’s placed to be on top of current events with a depth and nuance… Read More »It gets weird in here

Neuro reset FTW

by Isy
February 11, 2025February 11, 2025
activity, basics, care team, imp-possible, perspective, self-care, what works

I’m working on building up stamina because being a blob doesn’t agree with me. I had one of our rare, hard-won, absolutely stunning neuro physiotherapy… Read More »Neuro reset FTW

The times, they are a-changing

by Isy
December 27, 2024December 27, 2024
activity, ANS and fight-or-flight, care team, critical thinking, Dept. of Blith. Obv., humor, imp-possible, marathon, moving/traveling, nature, nutrition, perspective, politics, radical presence/radical acceptance, realpolitik, survival

Without descending into the morass of modern U. S. history and politics, let’s just say that I’d like the first months – up to half… Read More »The times, they are a-changing

New pain doc & big insights

by Isy
October 25, 2024October 27, 2024
1 Comment
adaptation, care team, critical thinking, imp-possible, perspective, radical presence/radical acceptance, self-care

I’m profoundly curious. (Take that however you want, LOL) When I was an inch from dying, around 12-14 years ago, when there was nothing left… Read More »New pain doc & big insights

Reading science (and surviving) 101

by Isy
December 4, 2023December 4, 2023
basics, brain care, care team, critical thinking, imp-possible, meds/drugs, neurotransmitters, perspective, PubMed, science, studies, supplements, tools and techniques, translating Medical Jargon into Plain English, what works

I wrote the start of this for a fellow spoonie today and realized it’s a good starting point for a subject most people find overwhelming:… Read More »Reading science (and surviving) 101

My job as a complex chronic patient

by Isy
July 6, 2023July 8, 2023
activity, adaptation, care team, critical thinking, loved ones, mortality, nutrition, perspective, radical presence/radical acceptance, realpolitik, self-care, story, what works

My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient

crab nebula, tuned to look like brain activity

May 2023 on the Back 40

by Isy
May 14, 2023May 14, 2023
activity, adaptation, basics, brain care, care team, CRPS knock-on effects, imp-possible, loved ones, mortality, nutrition, radical presence/radical acceptance, self-care

In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40

Competing needs vs. Layered needs

by Isy
January 21, 2023January 21, 2023
basics, care team, food allergies, imp-possible, nutrition, radical presence/radical acceptance, self-care, what works

CW: food & size & related topics. Many things are coming together and my soul is taking warmth and strength from the concatenation of care.… Read More »Competing needs vs. Layered needs

Protected: Outrageous fortune

by Isy
November 17, 2019November 20, 2019
3 Comments
adaptation, ANS and fight-or-flight, brain care, bugging out, care team, critical thinking, Dept. of Blith. Obv., imp-possible, loved ones, martial & internal arts, money, mortality, perspective, radical presence/radical acceptance, reiki/meditation, self-care, what works

There is no excerpt because this is a protected post.