Life, CRPS & Everything – Living constructively, adapting, and outwitting the odds

Pulling the masks off in pieces

by Isy
September 5, 2025September 5, 2025
adaptation, communication tools, CRPS knock-on effects, documentation, imp-possible, perspective, radical presence/radical acceptance, self-care

Having crashed and burned in a (for me) spectacular manner, I’m being (ahem) encouraged by many of my nearest and dearest to stop pretending I’m… Read More »Pulling the masks off in pieces

The Beast

by Isy
August 27, 2025
activity, ANS and fight-or-flight, CRPS knock-on effects, loved ones, perspective, self-care, survival

One of the characteristics of CRPS and some other longstanding brain-driven pain conditions is the occasional personality transplants which, especially combined with memory-holes and perceptual… Read More »The Beast

Where to start? Head to toe

by Isy
April 30, 2025
basics, care team, definitions & descriptions, Head, Head to toe

I’m going to give organizing my mental database a try here. The aim is to pick one broad topic each month and cycle through them… Read More »Where to start? Head to toe

Care of Spines & CRPS

by Isy
April 2, 2025
activity, basics, brain care, CRPS knock-on effects, injuries & surgeries, radical presence/radical acceptance, self-care, tools and techniques

This is about the messy intersection of CRPS & the mechanical aspects of central nervous system dysfunction, and dealing with those effects. I’m writing through… Read More »Care of Spines & CRPS

It gets weird in here

by Isy
March 14, 2025March 14, 2025
adaptation, brainiac, care team, critical thinking, cultural context, opinion, perspective, radical presence/radical acceptance

I was chatting with a close friend about a week ago. He’s placed to be on top of current events with a depth and nuance… Read More »It gets weird in here

With a pet & chronic illness

by Isy
March 5, 2025
CRPS knock-on effects, documentation, food allergies, imp-possible, moving/traveling, perspective, radical presence/radical acceptance, self-care, survival, tips on traveling with pain

This is a long one. Grab something to drink and put your feet up, if you want to… In the wildly unlikely event that, say,… Read More »With a pet & chronic illness

TIL: how to handle legal-ish problems in MA

by Isy
February 21, 2025February 21, 2025
legislation, money, politics, realpolitik, Today I Learned.., what works

TIL (Today I Learned) is a new category that lets me capture the random sh-…stuff I learn while “living anyway”. Today’s fun topic is, “You… Read More »TIL: how to handle legal-ish problems in MA

Fully-qualified human beings

by Isy
February 17, 2025
critical thinking, Dept. of Blith. Obv., humor, mortality, perspective, realpolitik, satire

When I was working in the software industry, the term “fully-qualified” entered my world in a marvelously exact way. The specific programmatic terminology here is… Read More »Fully-qualified human beings

Foggy… and formats

by Isy
February 15, 2025
critical thinking, CRPS knock-on effects, imp-possible, what works

There’s been a lot going on, but I’m not up to discussing it for lots of reasons, but mostly, TBH, because I’m foggy. I’m thinking… Read More »Foggy… and formats

Neuro reset FTW

by Isy
February 11, 2025February 11, 2025
activity, basics, care team, imp-possible, perspective, self-care, what works

I’m working on building up stamina because being a blob doesn’t agree with me. I had one of our rare, hard-won, absolutely stunning neuro physiotherapy… Read More »Neuro reset FTW