Life, CRPS & Everything – Page 4 – Living constructively, adapting, and outwitting the odds

My job as a complex chronic patient

by Isy
July 6, 2023July 8, 2023
activity, adaptation, care team, critical thinking, loved ones, mortality, nutrition, perspective, radical presence/radical acceptance, realpolitik, self-care, story, what works

My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient

Why Pride means life

by Isy
June 9, 2023June 9, 2023
critical thinking, imp-possible, injuries & surgeries, loved ones, martial & internal arts, perspective, politics, radical presence/radical acceptance, what works

On my 21st birthday, I went out with a bunch of women friends, including 2 couples. All of us health-care workers. Drunk jerk got thrown… Read More »Why Pride means life

crab nebula, tuned to look like brain activity

May 2023 on the Back 40

by Isy
May 14, 2023May 14, 2023
activity, adaptation, basics, brain care, care team, CRPS knock-on effects, imp-possible, loved ones, mortality, nutrition, radical presence/radical acceptance, self-care

In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40

The limits of mitigation: dishwashing

by Isy
April 12, 2023April 12, 2023
adaptation, basics, CRPS knock-on effects, documentation, food allergies, loved ones, perspective, radical presence/radical acceptance, what works

This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing

More on environmental insults on a hyper-reactive system

by Isy
January 30, 2023January 30, 2023
activity, adaptation, CRPS knock-on effects, imp-possible, moving/traveling, neurogastroenterology, nutrition, radical presence/radical acceptance, self-care, tools and techniques

I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system

Competing needs vs. Layered needs

by Isy
January 21, 2023January 21, 2023
basics, care team, food allergies, imp-possible, nutrition, radical presence/radical acceptance, self-care, what works

CW: food & size & related topics. Many things are coming together and my soul is taking warmth and strength from the concatenation of care.… Read More »Competing needs vs. Layered needs

Putting words to the problems

by Isy
January 13, 2023January 13, 2023
1 Comment
basics, CRPS knock-on effects, food allergies, imp-possible, money, nutrition, radical presence/radical acceptance, self-care

Thanks to wonderful people, I’m getting help in my home. Holy hosannahs, people, it. Is. Amazing. My part of the bargain is to get the… Read More »Putting words to the problems

Seeing, as in looking at, stars

by Isy
August 1, 2022August 2, 2022
basics, brain care, Covid-19, documentation, imp-possible, loved ones, mortality, nature, perspective, radical presence/radical acceptance, reiki/meditation, self-care

I saw a whole lot of stars last night. Good for the soul, that. I’ve been taking this opportunity to be in the experience of… Read More »Seeing, as in looking at, stars

Update: using adaptation tools

by Isy
May 29, 2022
adaptation, brain care, critical thinking, CRPS knock-on effects, imp-possible, loved ones, perspective, radical presence/radical acceptance, self-care, tools and techniques, what works

Yesterday, it came naturally to be warmly present for V during a big event where I stood in for her, even at a distance of… Read More »Update: using adaptation tools

Adaptation tools in use

by Isy
May 26, 2022May 26, 2022
1 Comment
activity, adaptation, ANS and fight-or-flight, brain care, Covid-19, CRPS knock-on effects, imp-possible, loved ones, mortality, radical presence/radical acceptance, tools and techniques, what works

As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use

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