radical presence/radical acceptance

Doctor appointment optimization

by Isy
August 11, 2016August 11, 2016
basics, care team, documentation, imp-possible, perspective, radical presence/radical acceptance, self-care, what works

Here’s my Doctor Appointment Optimization strategy. This is especially important for new diagnoses, new doctors, and any significant change or comcern you have. – Between… Read More »Doctor appointment optimization

My gut has a mind of its own

by Isy
June 25, 2016June 25, 2016
basics, brain care, critical thinking, CRPS knock-on effects, food allergies, imp-possible, neurogastroenterology, nutrition, radical presence/radical acceptance, self-care

I take good care of my brain. I work hard at learning more all the time about how to support and foster it in spite… Read More »My gut has a mind of its own

What does it take to seize a difficult life in both hands?

by Isy
April 1, 2016April 1, 2016
adaptation, imp-possible, mortality, perspective, radical presence/radical acceptance

This disease, like time and life, dips and dances but tends to go in one direction. As long as it doesn’t outrun my ability to… Read More »What does it take to seize a difficult life in both hands?

Make room for joy, especially when it isn’t easy

by Isy
February 23, 2016
5 Comments
basics, brain care, CRPS knock-on effects, imp-possible, loved ones, perspective, radical presence/radical acceptance, self-care

I’m an old ER nurse so please, trust me when I say that nobody gets a guarantee with this life. Nobody really knows what’s next,… Read More »Make room for joy, especially when it isn’t easy

Fragile Egg Syndrome

by Isy
February 13, 2016March 14, 2016
6 Comments
adaptation, ANS and fight-or-flight, care team, CRPS knock-on effects, documentation, radical presence/radical acceptance, self-care

Chronic pain patients are often called Difficult Patients, when the casual cruelty and reflexive contempt of medicine and the ignorance of other people grates too… Read More »Fragile Egg Syndrome

Losing Our Angels to Suicide

by Isy
February 9, 2016February 9, 2016
7 Comments
critical thinking, imp-possible, injuries & surgeries, legislation, loved ones, perspective, radical presence/radical acceptance

A friend I’ll call A died of suicide last night. It’s easy to say of people that they are rare and radiant souls once they’re… Read More »Losing Our Angels to Suicide

Handling anxiety and its obnoxious little friends

by Isy
January 27, 2016February 6, 2016
5 Comments
ANS and fight-or-flight, biofeedback, brain care, CRPS knock-on effects, legislation, loved ones, perspective, radical presence/radical acceptance, self-care

In CRPS and dysautonomia, several parts of the brain get under- or over-enthusiastic (or both, unpredictably.) It’s easy to oversimplify, but even more confusing; each… Read More »Handling anxiety and its obnoxious little friends

My preparation and self-care for surgeries and injuries

by Isy
January 16, 2016May 10, 2017
2 Comments
basics, brain plasticity, care team, CRPS knock-on effects, injuries & surgeries, nutrition, radical presence/radical acceptance, self-care

I have loads of advice for surgery and invasive procedures, so I might as well park it in one place. I used to be an… Read More »My preparation and self-care for surgeries and injuries

Living anyway

by Isy
January 1, 2016February 6, 2016
brain care, CRPS knock-on effects, imp-possible, perspective, radical presence/radical acceptance

I was holding off on blogging consistently until my brain was more consistently reliable — until I had enough improvement in my mental faculties. Reason… Read More »Living anyway

Uncle Peter passes

by Isy
May 17, 2015February 6, 2016
2 Comments
loved ones, mortality, perspective, radical presence/radical acceptance

There are no shortcuts with grief. There’s no trick to it. It just is. It’s just one part of life, different from joy or ecstasy… Read More »Uncle Peter passes

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