New pain doc & big insights
I’m profoundly curious. (Take that however you want, LOL) When I was an inch from dying, around 12-14 years ago, when there was nothing left… Read More »New pain doc & big insights
radical presence/radical acceptance
First aid at the roadside
[Follow this link for the audio version: https://www.spreaker.com/episode/2024-09-07-1staidatroadside–61297573] I headed to psychotherapy after texting, “I’m on my way. I’ll see you in person today, barring… Read More »First aid at the roadside
Onward and downward
My poor ol’ body has been carrying an unfair load for a long time. It does its very best, but the dice are loaded and,… Read More »Onward and downward
Radical acceptance and the hero’s journey; or, life with complex chronic illness
When I saw the clip below, I kept nodding and thinking, “You know, if you take out the high-flown language and fanboy reverence for the… Read More »Radical acceptance and the hero’s journey; or, life with complex chronic illness
Morning exercise, redux
Flashback Up until I got the injuries that precipitated CRPS, I used to run about 3.8 miles (about 6.1 km) up and down a redwood… Read More »Morning exercise, redux
My job as a complex chronic patient
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
Why Pride means life
On my 21st birthday, I went out with a bunch of women friends, including 2 couples. All of us health-care workers. Drunk jerk got thrown… Read More »Why Pride means life
May 2023 on the Back 40
In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40
The limits of mitigation: dishwashing
This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing
More on environmental insults on a hyper-reactive system
I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system