CRPS knock-on effects

Look on the bright side

I’m losing weight rather quickly. Clinically, this is unfortunate, and I’m not crazy about the bags of skin. However, it lightens the load on my… Read More »Look on the bright side

Dr. Oz and Paula Abdul on RSD/CRPS-1

by Isy
May 24, 2012October 10, 2014
3 Comments
CRPS knock-on effects, nutrition, what works

Paula Abdul has an unusual subtype of this unusual disease, and in her case, ice is excellent instead of deadly. Having labeled that huge caveat,… Read More »Dr. Oz and Paula Abdul on RSD/CRPS-1

EM-hmmmm

by Isy
April 18, 2012
CRPS knock-on effects, moving/traveling, self-care, what works

Last year, I could tell exactly when the fallout from Japan got here, because my hands and arms swelled up the moment I stepped outside.… Read More »EM-hmmmm

Reality check bounce

by Isy
February 4, 2012
adaptation, critical thinking, CRPS knock-on effects, insur-dance, mortality, perspective, what works

I got a settlement last year of $40,000. In 8 months, it’s nearly gone. I ran through my numbers and realized that all that money… Read More »Reality check bounce

Questing for a strange beast — a laptop I can use

by Isy
January 9, 2012
5 Comments
adaptation, CRPS knock-on effects, self-care, what works

I’m shopping for a laptop. This is not a trivial task. Here’s why: – It has to be light enough for me to handle easily.… Read More »Questing for a strange beast — a laptop I can use

Intestinal Fortitude: a dirty story

by Isy
November 21, 2011
5 Comments
CRPS knock-on effects, loved ones, meds/drugs, self-care

Back by popular demand … My crappiest Christmas ever — a comedy. Caveat emptor: This is not something to read before dinner, unless you’re as… Read More »Intestinal Fortitude: a dirty story

Pain Manifesto

by Isy
September 26, 2011
10 Comments
critical thinking, CRPS knock-on effects, loved ones, opinion, perspective, philosophy, poetry, tasty words

This came out of cold chronic CRPS type 1, a debilitating condition of intractable chronic pain, nervous system disruption, and multi-system dysregulation — destroying the… Read More »Pain Manifesto

Considering the end: a new beginning

by Isy
September 15, 2011
1 Comment
CRPS knock-on effects, nature, perspective

Mortality is tricky. We’re all going to go sometime, but we are hardwired to avoid the very thought of death. And so we should be.… Read More »Considering the end: a new beginning

Beyond courage & compassion

by Isy
July 13, 2011July 7, 2018
3 Comments
CRPS knock-on effects, perspective, self-care, what works

Here is a link to an article I once would have found moving and relevant to my nursing practice: Courage and Compassion The central idea… Read More »Beyond courage & compassion

A bad day

by Isy
May 27, 2011
2 Comments
CRPS knock-on effects, self-care, what works

I thought being able to live would ease my system. Unfortunately, my hands and feet are freaking out and going suddenly, rapidly downhill on pretty… Read More »A bad day

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