Managing with one foot
CRPS tends to demineralize the bones, creating a sort of Swiss-cheese-looking osteoporosis. I’ve held that at bay so far, and I believe it relates to… Read More »Managing with one foot
CRPS tends to demineralize the bones, creating a sort of Swiss-cheese-looking osteoporosis. I’ve held that at bay so far, and I believe it relates to… Read More »Managing with one foot
I heard from a lovely friend of my youth, who wanted to know what I’ve been doing since Egypt. I tried to tell her. I… Read More »Autobiographita
Those of us with crazy-bad illnesses appreciate the stroke of genius from Christine Miserandino, who originated the Spoon Theory to explain what it takes to… Read More »The Bean Dip Response, companion to the Spoon Theory
I lived without hope for years. Years. It was weird to look around one day and realize I had no hope, and that I hadn’t… Read More »Living without hope – tasks and aftereffects
Note – For legal reasons, this article is explicitly labeled an opinion piece. Quotes are used with prior permission of the author. I’ve written of… Read More »Un Crossed
I was a Registered Nurse for 8 years — in one of the first HIV specialist units in the country, in the only public ER… Read More »Define “invasive”
I collected health info on others for years. I’m what clinicians call “a good historian” — and in the health context, it means someone who… Read More »Documentation — Long time? Timeline!
As many physicians have noted, treating chronic pain is peculiarly frustrating. Therefore, treating a pain condition as subtle, complex and intransigent as CRPS must be… Read More »Rock stars
This is probably the simplest, most powerful tool for getting your complex care back into the realm of sanity. It’s easier said than done, but… Read More »The Red Pen Technique (dramatic music, please)
64% of CRPSers experience significant cognitive decline. Speaking as a member of that majority, I think that sucks. Most people with chronic pain find that… Read More »Is losing our minds to “pain brain” optional?