care team

Different doctors FTW

by Isy
March 6, 2017March 6, 2017
care team, critical thinking, food allergies, insur-dance, massage/bodywork, neurotransmitters, perspective, quest for a cure

My pain diagnostic specialist is elegantly opinionated. Fortunately, he acts out the distinction between being opinionated and being rude about it. We talked over a… Read More »Different doctors FTW

Documentation: Updating supplement sheet, showing changes

by Isy
January 3, 2017April 28, 2017
2 Comments
basics, care team, documentation, insur-dance, meds/drugs, nutrition, radical presence/radical acceptance, self-care

I switched to a new insurance company that might provide dental care. I haven’t tried them on that yet, but I will. It’s on the… Read More »Documentation: Updating supplement sheet, showing changes

More on medical relationships as a 2-way street

by Isy
December 17, 2016December 18, 2016
adaptation, care team, critical thinking, imp-possible, radical presence/radical acceptance

I have written about dealing with careless, ignorant, detached, and outright bad doctors, which is needful and — given the many problematic layers of living with chronic,… Read More »More on medical relationships as a 2-way street

Doctor appointment optimization

by Isy
August 11, 2016August 11, 2016
basics, care team, documentation, imp-possible, perspective, radical presence/radical acceptance, self-care, what works

Here’s my Doctor Appointment Optimization strategy. This is especially important for new diagnoses, new doctors, and any significant change or comcern you have. – Between… Read More »Doctor appointment optimization

Fragile Egg Syndrome

by Isy
February 13, 2016March 14, 2016
6 Comments
adaptation, ANS and fight-or-flight, care team, CRPS knock-on effects, documentation, radical presence/radical acceptance, self-care

Chronic pain patients are often called Difficult Patients, when the casual cruelty and reflexive contempt of medicine and the ignorance of other people grates too… Read More »Fragile Egg Syndrome

My preparation and self-care for surgeries and injuries

by Isy
January 16, 2016May 10, 2017
2 Comments
basics, brain plasticity, care team, CRPS knock-on effects, injuries & surgeries, nutrition, radical presence/radical acceptance, self-care

I have loads of advice for surgery and invasive procedures, so I might as well park it in one place. I used to be an… Read More »My preparation and self-care for surgeries and injuries

How I find my doctors

by Isy
November 10, 2015November 10, 2015
1 Comment
basics, care team, critical thinking, imp-possible

It’s not easy to find providers who can pay attention to the people in front of them and think their way out of a wet… Read More »How I find my doctors

Story: Shasta suggests a dog

by Isy
June 27, 2015January 6, 2020
2 Comments
adaptation, brain care, care team, loved ones, nature, perspective, story

This is another story improvised on the fly. One solution to boredom, when my studying-brain won’t work: I send it wandering, and it brings back… Read More »Story: Shasta suggests a dog

Of Mice, Medicine, and Malefactors

by Isy
January 7, 2015January 21, 2015
2 Comments
basics, care team, CRPS knock-on effects, Dept. of Blith. Obv., loved ones, meds/drugs, neurotransmitters, PubMed, quest for a cure, science

Older Brother and his wife, Aunt Krusty, sent me a fabulous little doohicky from a medieval town they visited. It’s a brooch of a common… Read More »Of Mice, Medicine, and Malefactors

Treating CRPS enough to have a life

by Isy
September 28, 2014September 28, 2014
4 Comments
adaptation, brain care, care team, CRPS knock-on effects, insur-dance, meds/drugs, neurotransmitters, nutrition, self-care, what works

Someone asked a question on social media that led to my doing a brain-dump on the basic format of current treatment for CRPS. This will… Read More »Treating CRPS enough to have a life