Word for the day
Spoonies, you know how we sometimes drift through the day? If we don’t have an external demand shaping our efforts — kids, work, methodical spouse… Read More »Word for the day
Spoonies, you know how we sometimes drift through the day? If we don’t have an external demand shaping our efforts — kids, work, methodical spouse… Read More »Word for the day
This is about the messy intersection of CRPS & the mechanical aspects of central nervous system dysfunction, and dealing with those effects. I’m writing through… Read More »Care of Spines & CRPS
American Thanksgiving is the 4th Thursday in November. I had a gift that day – a difficult one, but I’ve been unwrapping it and wondering… Read More »Tough gift, but a good one
Current science states that there are no nerves that convey temperature or pain in the brain. Well, not a normal brain. Well… not as far… Read More »Defining my terms: burny brain
I got into the habit of sharing photos from my outings with a bedbound friend of mine. She left this world years ago, but I… Read More »Photos from today’s walk, #1
I wrote the start of this for a fellow spoonie today and realized it’s a good starting point for a subject most people find overwhelming:… Read More »Reading science (and surviving) 101
In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40
I saw a whole lot of stars last night. Good for the soul, that. I’ve been taking this opportunity to be in the experience of… Read More »Seeing, as in looking at, stars
Yesterday, it came naturally to be warmly present for V during a big event where I stood in for her, even at a distance of… Read More »Update: using adaptation tools
As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use