First, keep breathing
I say that a lot. The first thing our bodies do when we get a burst of pain or other shock is, clench. Hard to… Read More »First, keep breathing
I say that a lot. The first thing our bodies do when we get a burst of pain or other shock is, clench. Hard to… Read More »First, keep breathing
Quick brain dump here. There have been a lot of questions lately about treatment options. THIS LIST IS NOT EXHAUSTIVE. It’s barely an overview. It’s… Read More »On treatments and at-home management strategies for CRPS
Those of us with crazy-bad illnesses appreciate the stroke of genius from Christine Miserandino, who originated the Spoon Theory to explain what it takes to… Read More »The Bean Dip Response, companion to the Spoon Theory
I lived without hope for years. Years. It was weird to look around one day and realize I had no hope, and that I hadn’t… Read More »Living without hope – tasks and aftereffects
Someone asked a question on social media that led to my doing a brain-dump on the basic format of current treatment for CRPS. This will… Read More »Treating CRPS enough to have a life
We went to a great farmer’s market, where J got me a ceviche tostada that had to be tasted to be believed. I got a… Read More »Move slowly, stay happy… except when pushing one and a half to two inches straight down on the lower half of the sternum
When I’m out in the world, my reflex is to shove grief into a bundle and push it aside, and try to act as if… Read More »T’ai chi and emotional pain
When I was 4, we moved to New Jersey from Turkey, as my parents thought their kids should get a feel for their native land.… Read More »Threads on the loom: bereavement and CRPS
I collected health info on others for years. I’m what clinicians call “a good historian” — and in the health context, it means someone who… Read More »Documentation — Long time? Timeline!
Doctors believe what they see.The training they get and the laws they must follow all reinforce that. If they see it themselves, then it’s real;… Read More »Documentation – a picture’s worth a thousand words