Isy

I think I'm getting better.

Dealing with Dante and my DNA

by Isy
November 23, 2023
Uncategorized

A year ago, I ordered a DNA whole-genome sequencing (10x) test from Dante Labs. It was on sale for a price I haven’t seen before… Read More »Dealing with Dante and my DNA

Onward and downward

by Isy
September 5, 2023September 5, 2023
activity, basics, CRPS knock-on effects, imp-possible, perspective, radical presence/radical acceptance, self-care

My poor ol’ body has been carrying an unfair load for a long time. It does its very best, but the dice are loaded and,… Read More »Onward and downward

Radical acceptance and the hero’s journey; or, life with complex chronic illness

by Isy
August 17, 2023
imp-possible, mythology, perspective, radical presence/radical acceptance, tools and techniques, what works

When I saw the clip below, I kept nodding and thinking, “You know, if you take out the high-flown language and fanboy reverence for the… Read More »Radical acceptance and the hero’s journey; or, life with complex chronic illness

Glorious moment

by Isy
August 3, 2023August 3, 2023
imp-possible, loved ones, music, perspective, story

I’m enjoying my monthly latte, and it’s excellent. The café is playing songs from my youth — more precisely, Elder Brother’s youth. He got an… Read More »Glorious moment

Morning exercise, redux

by Isy
July 19, 2023July 19, 2023
activity, adaptation, basics, brain plasticity, imp-possible, martial & internal arts, radical presence/radical acceptance, self-care, what works

Flashback Up until I got the injuries that precipitated CRPS, I used to run about 3.8 miles (about 6.1 km) up and down a redwood… Read More »Morning exercise, redux

My job as a complex chronic patient

by Isy
July 6, 2023July 8, 2023
activity, adaptation, care team, critical thinking, loved ones, mortality, nutrition, perspective, radical presence/radical acceptance, realpolitik, self-care, story, what works

My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient

Why Pride means life

by Isy
June 9, 2023June 9, 2023
critical thinking, imp-possible, injuries & surgeries, loved ones, martial & internal arts, perspective, politics, radical presence/radical acceptance, what works

On my 21st birthday, I went out with a bunch of women friends, including 2 couples. All of us health-care workers. Drunk jerk got thrown… Read More »Why Pride means life

crab nebula, tuned to look like brain activity

May 2023 on the Back 40

by Isy
May 14, 2023May 14, 2023
activity, adaptation, basics, brain care, care team, CRPS knock-on effects, imp-possible, loved ones, mortality, nutrition, radical presence/radical acceptance, self-care

In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40

The limits of mitigation: dishwashing

by Isy
April 12, 2023April 12, 2023
adaptation, basics, CRPS knock-on effects, documentation, food allergies, loved ones, perspective, radical presence/radical acceptance, what works

This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing

More on environmental insults on a hyper-reactive system

by Isy
January 30, 2023January 30, 2023
activity, adaptation, CRPS knock-on effects, imp-possible, moving/traveling, neurogastroenterology, nutrition, radical presence/radical acceptance, self-care, tools and techniques

I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system

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