Many itchings!

Another great question about an ordinary (for CRPS!) change led to another “Isypedia” blurch. Here goes. Once in awhile, something changes out of the blue. What is a CRPSer to think when suddenly caffeine and chocolate cause massive itching? Nerd note: Yes, the word “caffeine” is used differently in ordinary … Continue reading

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Mental toolkit for overwhelming times

felix-the-cat_n-bag-o-tricks

As I’ve said before, much of brain-retraining has to do with speaking to the primitive parts of the brain in ways it can’t ignore. Being overwhelmed is very common these days. So, this tool is helpful for far more than just  my fellow painiacs. I originally laid this out for … Continue reading

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CRPS terminology, under the nervous grin

After talking with patients, doctors, and loved ones — and, as a trained observer, carefully noticing the changes in posture, expression, and tone as I’ve done so — I’ve arrived at the following conclusion. I realize it flies in the face of current accepted usage, but there are some things … Continue reading

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Isy’s guidelines for taking care of relationships when it’s imp-possible to have them

Relationships can be so fraught! Add to that a disease nobody understands without years of serious effort; unbelievable pain; weird deficits (sound volume? Vibration? Time in the shower? Crowds and excitement? How weird is it that that stuff can make us so much sicker, eh?); forgetfulness; loss of perceptions that tell … Continue reading

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Cleaning up the question of antibacterial soap

This is from one of my Isypedia-type replies to someone with a dreadful case of clostridium difficile (commonly known as c.diff) who had been told to use antibacterial soap to wash. NB: This is not an opportunity to argue about antibacterial soap, but a sharing of experience from someone who was … Continue reading

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Doctor appointment optimization

Here’s my Doctor Appointment Optimization strategy. This is especially important for new diagnoses, new doctors, and any significant change or comcern you have. – Between now and your appointment, keep a pad handy and note down anything you want to find out when you see the doc. – A day … Continue reading

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Fixing the brakes

Interesting week here. A dear friend is embroiled in one of those ghastly legal tangles where the vultures are rigged to win. I’m the key defense witness. This comes up later. This whole winter, I’ve been basking — simply basking! — in the sheer delight of being safe, sheltered, warm, … Continue reading

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A simple 3-step program for bearing the unbearable

It’s been an interesting summer. It’s good to be safe and well. And that’s all I want to say about it right now. On to more interesting things. Those of us who have to bear the unbearable eventually learn that there’s no trick to it, no shortcuts, no secret wisdom. … Continue reading

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