Reading science (and surviving) 101
I wrote the start of this for a fellow spoonie today and realized it’s a good starting point for a subject most people find overwhelming:… Read More »Reading science (and surviving) 101
I wrote the start of this for a fellow spoonie today and realized it’s a good starting point for a subject most people find overwhelming:… Read More »Reading science (and surviving) 101
When I saw the clip below, I kept nodding and thinking, “You know, if you take out the high-flown language and fanboy reverence for the… Read More »Radical acceptance and the hero’s journey; or, life with complex chronic illness
Flashback Up until I got the injuries that precipitated CRPS, I used to run about 3.8 miles (about 6.1 km) up and down a redwood… Read More »Morning exercise, redux
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
On my 21st birthday, I went out with a bunch of women friends, including 2 couples. All of us health-care workers. Drunk jerk got thrown… Read More »Why Pride means life
This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing
CW: food & size & related topics. Many things are coming together and my soul is taking warmth and strength from the concatenation of care.… Read More »Competing needs vs. Layered needs
Yesterday, it came naturally to be warmly present for V during a big event where I stood in for her, even at a distance of… Read More »Update: using adaptation tools
As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use
I’d like to eschew certain arguments altogether. This is not about dissing or justifying one approach over others. Every one of us has to figure… Read More »First aid kit – homeopathic side