My job as a complex chronic patient
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40
I saw a whole lot of stars last night. Good for the soul, that. I’ve been taking this opportunity to be in the experience of… Read More »Seeing, as in looking at, stars
As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use
That last post, about acknowledging the shimmering sense of mortality I’ve lived with for nearly a year? Well, I kept meaning to post an update,… Read More »When momentum uses inertia
I love the term “radical presence” because it feels radical to jump the barrier of overwhelming emotion to land face-to-face with the moment and be… Read More »Active presence
As regular readers know, I’ve had an eventful life. The past 20 years, particularly, have been a circus of bizarre improbabilities, oxymoronic paradoxes, and irreconcilable… Read More »Chaos theory
Ladies, gentlemen, and others, we can do this. The tracks have been laid. All we need to do is acknowledge them, and accept where they… Read More »Living anyway, up at the sharp end
I’ve got a sweet, safe little spot all to myself now. I can’t talk about it much but the gratitude and relief is STUPENDOUS. It… Read More »A 3-point reality check in the armpit of winter
This morning, I woke up feeling like a butcher knife was lodged in my heart, the memory of barking and snarling voices ringing in my… Read More »Angel wings & tactical things