Getting held up by New York

I’m working on a novelette about the meningitis madness of last month. Until I get it done, let me entertain you with another tale of traveling with pain. About five years ago, I fled an intolerable situation in California and, being pretty sure I was in my last few months … Continue reading

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Fevers, friends, forgetting, and a kind of freedom

With the kind consent of the friend mentioned, I post the following exercise in “radical presence”, or staying sane in spite of the craziness… Bubbles of thoughts are rising through the viscidity of my mind, drifting from side to side, now tending one way, now tending another. Feels like a relapse of … Continue reading

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Freaky Fibro and the elegance of precision

As the title hints, it’s been another fascinating visit with my pain diagnostician. His current working diagnosis is fibromyalgia, which he characterizes as being capable of throwing some hairy curve balls (my terminology, not his) including the growing litany of food sensitivities, which solves a major problem in my mind. … Continue reading

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Aw, nuts!

While I was mulling the constancy of nausea and yuckiness, looking for a reason more useful than “it’s winter”, I realized I had relentless cascades of post-nasal drip. The stomach isn’t too fond of relentless cascades of post-nasal drip, because the glucoprotein complex generically called “mucus”, which we usually call … Continue reading

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On trauma in central nervous system sensitization* & dysautonomia

I’ve been mulling this for years and occasionally blog it on a case-by-case basis: Handling bereavement (with digressions): http://livinganyway.com/wp/2014/03/08/threads-on-the-loom-bereavement-and-crps/ An anxiety toolkit I came up with for myself: http://livinganyway.com/wp/2016/01/27/handling-anxiety-and-its-obnoxious-little-friends/ On a surprisingly useful tool which really does help (despite my complaining): http://livinganyway.com/wp/2013/07/16/relentless/ Fortunately for all of us, the blogger at Elle and the Autognome has done … Continue reading

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More on medical relationships as a 2-way street

I have written about dealing with careless, ignorant, detached, and outright bad doctors, which is needful and — given the many problematic layers of living with chronic, intransigent pain — appropriate. However, I’m also a nurse, and I really do see things from both sides. You’re both right. Having said that, I … Continue reading

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Start with, “Never give up. Never surrender.”

“Never give up. Never surrender.” -attributable to: Leonidas of Sparta, Jael the wife of Heber, Alexander the Great, Queen Boudicca, Mary Magdalen, the Prophet Mohammed, Hildegaard of Bingen, Vlad the Impaler, Queen Isabel of Spain, Geronimo, Copernicus, Marie Curie, Winston Churchill, Aung Suun Kyi, Terry Pratchett, the 14th and Final … Continue reading

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Isy’s guidelines for taking care of relationships when it’s imp-possible to have them

Relationships can be so fraught! Add to that a disease nobody understands without years of serious effort; unbelievable pain; weird deficits (sound volume? Vibration? Time in the shower? Crowds and excitement? How weird is it that that stuff can make us so much sicker, eh?); forgetfulness; loss of perceptions that tell … Continue reading

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Cleaning up the question of antibacterial soap

This is from one of my Isypedia-type replies to someone with a dreadful case of clostridium difficile (commonly known as c.diff) who had been told to use antibacterial soap to wash. NB: This is not an opportunity to argue about antibacterial soap, but a sharing of experience from someone who was … Continue reading

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Talking about CRPS with boundaries, perspective, and joy

I’m going through one of those periods where I’m just tired of my body hurting. This is one of those offhand remarks that makes fellow painiacs nod understandingly, offer a kind look or emoji, and move on, but it makes normal (-ish) people with good social skills cringe and stops … Continue reading

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