Oh look! I’ve adapted!
I used to be punctual, meaning, 3-10 minutes early. I used to be relentlessly diligent. I used to be cast-iron reliable. (I worked hard to… Read More »Oh look! I’ve adapted!
I used to be punctual, meaning, 3-10 minutes early. I used to be relentlessly diligent. I used to be cast-iron reliable. (I worked hard to… Read More »Oh look! I’ve adapted!
I lived without hope for years. Years. It was weird to look around one day and realize I had no hope, and that I hadn’t… Read More »Living without hope – tasks and aftereffects
Someone asked a question on social media that led to my doing a brain-dump on the basic format of current treatment for CRPS. This will… Read More »Treating CRPS enough to have a life
I collected health info on others for years. I’m what clinicians call “a good historian” — and in the health context, it means someone who… Read More »Documentation — Long time? Timeline!
Doctors believe what they see.The training they get and the laws they must follow all reinforce that. If they see it themselves, then it’s real;… Read More »Documentation – a picture’s worth a thousand words
This is a brain-dump from a recent social-media post. Since the same question was asked 3 times in one day on my groups, I figured… Read More »On sleeping despite all this
When I was a nurse, I could see when death was creeping up on someone. I saw gray fluttering around the person’s edges, especially around… Read More »There’s always an afterwards
This is probably the simplest, most powerful tool for getting your complex care back into the realm of sanity. It’s easier said than done, but… Read More »The Red Pen Technique (dramatic music, please)
64% of CRPSers experience significant cognitive decline. Speaking as a member of that majority, I think that sucks. Most people with chronic pain find that… Read More »Is losing our minds to “pain brain” optional?
My pain psychologist is very insistent that 90% of my day has to be predictable. This allows my nervous system to heal and re-stabilize to… Read More »Relentless