Morning exercise, redux
Flashback Up until I got the injuries that precipitated CRPS, I used to run about 3.8 miles (about 6.1 km) up and down a redwood… Read More »Morning exercise, redux
Flashback Up until I got the injuries that precipitated CRPS, I used to run about 3.8 miles (about 6.1 km) up and down a redwood… Read More »Morning exercise, redux
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40
This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing
I’m dealing with a mold-spore exposure in my home that’s only somewhat mitigated, and can’t reach a better state until the weather allows me to… Read More »More on environmental insults on a hyper-reactive system
Yesterday, it came naturally to be warmly present for V during a big event where I stood in for her, even at a distance of… Read More »Update: using adaptation tools
As some of you know, CRPS & dysautonomia involve constant re-traumatizing of the brain & nervous system. Our brains have flows that can resemble that… Read More »Adaptation tools in use
Ladies and gentlebeings, here’s what I’ve come to after a 6 month period of, firstly, a strict diet of tapioca, carrots, butternut, apples, and chicken;… Read More »Low-histamine shopping list and recipes
I’ve been walking for 2 1/4 miles 6 out of 7 days per week for a few weeks, and it stopped kicking my butt, woohoo!… Read More »Excercise intolerance, the invisible vampire
I walk everywhere I need to go. I finally tried the bus, and honestly, it could have been worse — but the base of my… Read More »New set of wheels