Reading science (and surviving) 101
I wrote the start of this for a fellow spoonie today and realized it’s a good starting point for a subject most people find overwhelming:… Read More »Reading science (and surviving) 101
I think I'm getting better.
I wrote the start of this for a fellow spoonie today and realized it’s a good starting point for a subject most people find overwhelming:… Read More »Reading science (and surviving) 101
A year ago, I ordered a DNA whole-genome sequencing (10x) test from Dante Labs. It was on sale for a price I haven’t seen before… Read More »Dealing with Dante and my DNA
My poor ol’ body has been carrying an unfair load for a long time. It does its very best, but the dice are loaded and,… Read More »Onward and downward
When I saw the clip below, I kept nodding and thinking, “You know, if you take out the high-flown language and fanboy reverence for the… Read More »Radical acceptance and the hero’s journey; or, life with complex chronic illness
I’m enjoying my monthly latte, and it’s excellent. The café is playing songs from my youth — more precisely, Elder Brother’s youth. He got an… Read More »Glorious moment
Flashback Up until I got the injuries that precipitated CRPS, I used to run about 3.8 miles (about 6.1 km) up and down a redwood… Read More »Morning exercise, redux
My first nursing job was on an HIV unit in 1991. We were in the 2nd wave of the med mixes, so there were some… Read More »My job as a complex chronic patient
On my 21st birthday, I went out with a bunch of women friends, including 2 couples. All of us health-care workers. Drunk jerk got thrown… Read More »Why Pride means life
In the spirit of this blog’s brief as a “user manual for complex chronic spoonies”, here’s a health update after another interesting year (my personal… Read More »May 2023 on the Back 40
This article is utilitarian. It provides descriptive terms for people with similar experiences to use in communicating with their doctors, payors, and loved ones. It… Read More »The limits of mitigation: dishwashing