HomeCRPS knock-on effects"Angel" in my mouth


"Angel" in my mouth — 8 Comments

  1. Hello, I just found your blog and wondered what you mean by POTers in your post about the new nerve discovery. I can’t find an explanation of it anywhere else. I am an RSD survivor. My brush with the acute phase of type 2, was in the Spring of ’94. I was facing the likelihood of a morphine pump when I found a chiropractor who inadvertently released the peroneal nerve impingement that was trapped during some work in the garden. I still have peripheral nerve damage in both feet and ankles from that experience and have no vibratory response in my left ankle. But, I am so thankful to have the greater part removed. The pain such that I remember begging to have my feet amputated. Anyway, a couple years after I had RSD, I had widespread Fibromyalgia which lasted 8 years. It went into remission when I did an elimination diet. I was about 95% healed after changing to a raw food diet and taking out offending foods containing gluten. I had ten good years and traveled and did a lot. Now I am facing a crippling case of degenerative joint disease (DDD) causing more compressed nerves. Ha! I can’t seem to get away from painful conditions. I was wondering if any of you have come across any connections between any of these conditions? I know there must be some way to explain the amazing amount of bone spurs in my spine and joints. I am thinking they might have grown up as a way to assist in the support of my skeletal system in the absence of properly functioning nerves and muscles. Thanks for your thoughts. I really like the way you are using your blog to educate and connect with the world.

    • What an intriguing comment.. and a tenaciously difficult path at your feet! I’m more impressed by your repeated remissions than your revolving conditions, though. I’ll explain in a moment.

      To answer your question, POTS stands for Postural Orthostatic Something I Can’t Recall, and it’s a type of autonomic dysfunction that makes it very difficult to maintain stable blood pressure. It’s crippling because of the dizziness, nausea and repeated falls (and consequent injuries.) The knockon effects of unstable b.p. on the brain and circulatory system are unpleasant too. It’s something that turns up comorbidly with CRPS, and many think it’s a direct result of the autonomic disruption of chronic CRPS itself.

      These diseases have several underlying characteristics in common: at the system level, the immune system is involved in maintaining the disease state (whether or not it causes it is a separate question), and the citric acid cycle in the mitochondria becomes toxified with the wrong form of nitrogen so your cells go under siege from free radicals gone wild. The heaviest concentrations of mitochondria are in the nerve and muscle cells. Explains a lot, eh?

      There also seems to be HPA axis dysregulation — that is, the hypothalamus (brain’s signal switchboard), pituitary (regulatory signal-sender in the brain) and adrenal glands (secretory hormone gland for the survival responses.) This has been known anecdotally for years but the science is starting to catch up in regard to CRPS, fibromyalgia, and possibly some other diseases.

      There’s more about mitochondria and the HPA axis in my science blog, http://biowizardry.blogspot.com.

      Raw food rocks. I miss my dehydrator. One day I’ll get another.

      Best of luck on your latest adventure (egads!) and thank you for your kind words 🙂

  2. Pingback: When I lose everything but me | Life, CRPS & Everything

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