This came out of cold chronic CRPS type 1, a debilitating condition of intractable chronic pain, nervous system disruption, and multi-system dysregulation — destroying the body’s ability to manage heat/cold, blood sugar, immune defense, circulation, sensation, bone density, movement, vision, digestion, heart function, and ultimately survival.
“Standard” treatments don’t work well for me; moreover, they involve invasive procedures too brutal to tolerate and medications I’m either outright allergic to, or that impair me so profoundly I can no longer function. At all.
MY CHRONIC PAIN MANIFESTO
Yes, it hurts.
It’s going to anyway.
So should I hoard my days
And fast from life?
Comfort myself with poisons,
Blister-packed and FDA approved?
Some think it would be best all ’round.
I’d cure them if I could (heh!)
But I’m too tired for
Yet another pointless struggle.
The sunlight pours through trees like prosecco
And reminds me what it means to live:
Voices warm with love, the
Mouth-smack of good food,
The hug of hills and the
Rough snuggles of the sea.
Hoard my days? I’ll spend each one
Like it’s stuffed with jewels
Pouring through my hands like a miser’s dream.
Feast on this:
The cost of life is much the same.
The difference lies in how you spend it.