Lovely note to start on

Pisses me off that almost all the studies done on CRPS insist on recruiting subjects (that is, patients) who have only one affected limb!  This specifically precludes a huge proportion of us. Unrealistic & stupid.

Happily (and never was the word less apt), RSDS.org is doing a 20-year study on the natural history of CRPS.  With luck, that might change the general focus to something more realistic. It only takes practice about, oh, 10-15 years to catch up with the data.

Frkn one-affected-limb-only.  Sheesh.  Bloody amateurs.

If I had a massive gift to endow, I’d create scholarships for people with CRPS to get all the support & equipment they need to complete medical school, medically-related advanced degrees, whatever it takes.

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